Lauren and Joe Kamnik play a game with their children, from left, Vivienne, 4, Oliver, 5, and Wesley, 4.The Kamniks’ is a hectic household, the more so because of Wesley’s rare genetic disorder.

Photo / Thinkstock Lauren Kamnik always knew that she was meant to ... Wesley needed a feeding tube and remained developmentally delayed. He was 4 when the Kamniks finally received a diagnosis ...