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Woman Explains What it's Like Living with a Rare ConditionIn this insightful video, a woman shares her personal experience living with Marfan Syndrome, a rare condition that has affected her chest and caused unusually long limbs. She talks about how the ...
The 37-year-old patient was diagnosed with Marfan’s syndrome in early adulthood. By then, he had reached a critical stage of HPS. His breathing became severely compromised due to low oxygen ...
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