Jessica Fein in two pictures with her daughter, Dalia, who died aged 17 after living with MERRF Syndrome. Jessica Fein. Dalia died one week after her 17th birthday.

"I hated every single thing about this insidious disease ... I would have given anything ― my home, my limbs, my life ― to banish it. But its tentacles were too strong." ...

He went on to explain that MERRF, or myoclonic epilepsy with ragged red fibers, is a rare form of mitochondrial disease, that it ’ s degenerative and that there ’ s no cure. All of this seemed ...

Kearns–Sayre syndrome Mitochondrial encephalopathy, lactic acidosis, and stroke-like episodes (MELAS) syndrome Myoclonic epilepsy with ragged red fibers (MERRF) Syndrome ...

UK officials have approved two women for mitochondrial replacement therapy, the fertilization procedure that results in a baby technically parented by three people, the Guardian reports. The ...

Estrella Salazar, a 17-year-old science whizz from a working-class town near Mexico City, was inspired by her sister to develop an app to help deaf and hard-of-hearing Mexicans communicate more ...

But the truth is simpler than that: I am not the person I was before I knew about MERRF syndrome. The impact of rare disease is now woven into my DNA and inextricably links my daughter and me.