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The Ehlers-Danlos Syndromes (EDS) refers to a collection of genetic disorders that weaken collagen. EDS is under-recognized and often mistaken as a psychiatric condition. EDS is not curable, but ...
A group of young patient-researchers is showing that patient-led research can be indispensable in the effort to crack complex, long-misunderstood illnesses, like hypermobile Ehlers-Danlos syndrome.
Responding to a paparazzi photo that captured her walking with her cane, Lena Dunham explained she has Ehlers-Danlos syndrome -- a group of disorders affecting the joints and skin.
Hypermobile Ehlers-Danlos syndrome is a connective tissue disorder. When Sarah Lazarus’ daughter was diagnosed with it, she discovered that the majority of cases are going undiagnosed for decades.
Vascular Ehlers-Danlos syndrome is a severely underdiagnosed condition, Randi Edwards writes. But it took only six weeks after her son was born to confirm what she and her husband already knew ...
Learn how to help a Gardner, N.D., woman suffering from Ehlers-Danlos Syndrome Check out our weekly list of new fundraisers and benefits from Lend A Hand Up, a nonprofit crowdfunding site that ...